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Held in celebration of World Hemophilia Day 2024, the workshop embraced this year’s global theme, “Access for All”, reinforcing the importance of equitable care and support for everyone living with hemophilia.

The workshop aimed to educate and empower attendees through expert-led sessions and interactive discussions. Doctors from various departments shared valuable insights on the management and care of hemophilia. The sessions included lectures and an engaging Q&A segment, allowing patients and caregivers to interact directly with medical professionals.

- Dr. Ankur Jain, Professor, Department of Hematology, Safdarjung Hospital, New Delhi, led an important session that focused on building awareness around Extended Half-Life (EHL) factor for hemophilia, its usage, management, and the advantages.

- Dr. Richa Mohan, Member, Psychosocial Committee, WFH conducted a dedicated session on the psychosocial impact of hemophilia on both patients and their families, offering insights into mental health support and coping mechanisms.

As many of the patients in attendance were children, a painting and essay writing competition was also organized to creatively engage them and encourage their expression around living with hemophilia.

The speakers included:

• Dr. Ankur Jain, Professor, Department of Hematology, Safdarjung Hospital, New Delhi
• Dr. J.M. Khunger, Safdarjung Hospital, New Delhi
• Dr. Sumita Chaudhary, Safdarjung Hospital, New Delhi
• Dr. Richa Mohan, Member, Psychosocial Committee, WFH and Director, Empowering Minds Society for Research and Development, New Delhi, India

The workshop fostered awareness, clarified misconceptions, and strengthened the community’s understanding of holistic hemophilia care.

This effort was organized with the support of Novo Nordisk India Pvt. Ltd.

The event was flagged off by the area MLA Sumesh Shokeen who whole heartedly appreciated the endeavors of SHC India and promised to provide full support for any of such noble causes. The event received immense response from people from all walks of life despite the deterrent morning chill & heavy fog. This time the event witnessed the participation from special children, having some physical limitations, demonstrating the fact that enthusiasm and strong mental abilities break all barriers.

The Run was conducted by a technical team headed by Dr. Rakesh Gupta from Indira Gandhi Institute of Physical Education & Sports, New Delhi.

SHC India earlier organized 4 free Health Camps on 15th, 16th, 21st and 22nd November in Dwarka. The Health Camps & health support services during Marathon were conducted with the help of Columbia Asia Hospital, Palam Vihar. The other partners were Baxter India, Thyme Advertising & Dwarka City

The complete programme was very well covered by Times of India, Dwarka City & Web-portal Dwarka Parichay.

SHC India thanks all the people and educational institutions who participated in & backed this event, making it a huge success.

The list of Winners is as under:

• Mini Marathon ( Boys)
  1st Prize: Narinder Singh
  2nd Prize: Lalit Verma
  3rd : Deepak
• Mini Marathon ( Girls)
  1st : Surekha
  2nd : Nikita
• Sr. Citizen ( Women):
  1st : Mamta

• Sr. Citizen: ( Men)
  1st : N C Joshi
  2nd : Col D P S Gulia
• Roller Skating Stars(Boys)
  1st : Ketan from Kendriya Vidyalaya Sec 5
  2nd : Harshul from Venketashwar Intl School ( VIS)
  3rd: Yash from VIS
• Roller Skating stars (Girls)
  1st : Kunika from JBP School

• Roller Skating Cadets Boys
  1st : Manikaran from Vis
  2nd : Deepak from KV sec 5
  3rd : Mohit from Vandana International
• Roller Skating Cadets Girls
  1st : Vanishree from VIS
• Roller Stars Run Boys
  1st : Vijay Rathi Sam International ( SIS )
  2nd : Rinku Rathi SIS
  3rd : Mohd. Naushad from RPV

• Roller Stars Run Girls
  1st : Mukesh from SIS
  2nd : Vandita from Rainbow Pub School ( RPS)
  3rd : Rashmi from RPS
• Masters Run: Men
  1st : Laxman Sharma
  2nd : Girish from IGIPESS
  3rd: MK Parhi
• Masters Run Women
  1st : Radika Kulkarni
  2nd : Nirmala Devi
  3rd : Monika Gupta

• Challenging Stars Boys
  1st : Rohit from Cozy Cots (CC)
  2nd : Himanshu from CC
  3rd : Shiva from CC
• Challenging Stars Girls
  1st : Bonita from CC
  2nd : Kuldeep Kaur from CC
  3rd : Nikita Dhar from CC

Slogan: "COUNT ME IN"

The programme details are as under:

1. Awareness Program

To create the awareness on how to take care of the affected persons we shall have a lecture/ demo session from the expert. This will help doctors, pwhs and their family members on what to do at the time of emergency and where they should go for the right treatment without wasting the precious time.

2. Release of book "Hemophilia Aur Aap"

SHC India will be releasing a book on how to manage hemophilia with all the important & useful information for the benefit of pwhs, their parents, treaters and teachers. The distribution of the book is free.

Distributing "Factor Kits"

SHC India will distribute free of cost "Factor Kit"- a very handy infusion kit along with details of the pwh carrying it during traveling or in case of emergency.

This is one more step in our tough journey towards realizing our Vision "Nobody should die or become disabled when the treatment is available"

Support our initiatives and become part of celebrations on
World Hemophilia Day

More than 350 delegates from across the country attended this conference.
Laboratory Workshop on hemophilia diagnosis was an important part of the programme. 26 doctors received training.

The conference was inaugurated by Shri Vivek Rae, Principle Secretary Health & Family Welfare, Govt. of NCT of Delhi. An important part of the inauguration was Frank Schnabel Hemophilia Awards-2007 Ceremony at Jawaharlal Nehru Auditorium (Conference Hall), AIIMS, New Delhi.

"SHC India is focused to strengthening the cause of persons with hemophilia in the country and will not allow any commercialization of the cause" said Vijay Kaul, Executive Director. We are here to spread awareness about the condition by using various platforms of general interest.

"Management of Hemophilia is possible and the affected person can lead a near normal life if treatment is provided" said Dr. Chandy of CMC Vellore.
SHC India has instituted Frank Schnabel Hemophilia Awards. Frank Schnabel was a Canadian person affected with hemophilia who founded the World Federation of Hemophilia in 1963. Frank Schnabel's vision "We will emerge victorious" is the inspiration with which the people at SHC India work.

Frank Schnabel Hemophilia Awards will be bestowed upon annually to those who have been working for the cause of Hemophilia and rendering their exemplary services to the people-in-need. This award is a humble attempt to recognize the contribution and also motivate more and more people to work for hemophilia cause.

The Awardees for 2007 are:

Air Marshal S. Chand ( Retd.)

A person with wisdom & passion, Air Marshal (Retd.) has been actively pleading the cause of hemophilia at the national & international levels. Despite his high responsibilities with the Indian Air Force until his retirement, he has been serving the cause and providing the direction to hemophilia movement since 1983.

Prof. & Dr. Alok Srivastava

Dr. Alok Srivastava (CMC Vellore) is the most experienced and highly qualified hematologist serving the cause of hemophilia for more than 2 decades. Persons suffering from hemophilia travel thousands of miles to consult him and receive the best possible treatment at Christian Medical College & Hospital, Vellore.

He is known for his research on hemophilia treatment world wide & is on the board of World Federation of Hemophilia, Canada,
He is also the Chairman of the sub-committee of International Society for Thrombosis & Haemostasis and several other international bodies.
He is the Head, Department of Hematology, CMC & H, Vellore.

Dr Mammen Chandy

Dr. Mammen Chandy is responsible for setting up the Department of Clinical Hematology which has led to establishment of a successful and ongoing Bone Marrow Transplant Programme.
He has been successfully working on New & Innovative methods of hemophilia treatment particularly for the developing countries where there is always a resource crunch.
He has also served as Member of the Executive Council of World Federation of Hemophilia.

He is also the Director of International Hemophilia Training Centre, Vellore since 2000. This is a landmark in hemophilia training in India.

Shri Jittender Kapoor

Shri. Jittender Kapoor is a known philanthropist and has been working in social sector for more than 30 years now. This includes 25 years in the service of people suffering from hemophilia. He is also one of the founders of Lions Hospital & Research Centre, New Friends Colony, New Delhi.

He also served on Constitutional Committee of World Federation of Hemophilia and contributed with his financial & administrative acumen all these years to the cause of hemophilia.
He also served as President, Lions Club (Delhi Capital) and implemented several health programmes including "Sight First" accessible to the poor and aged.
A selfless, passionate and a great visionary, is always ready to render a helping hand to anyone in needy.

George Tharakan

George Tharakan is known as one of the founders of hemophilia movement in India. He has been working for the affected families in Kerela since the time when no medicines were available in India. During those days he networked & educated the affected people about the condition and first aid. He explored the possibility of bringing the life saving medicines to India which attracted a huge customs & import duty prior to 1983. He is credited with making it as one of the Essential Medicines in the Indian Drugs List with zero duties.

Programme Highlights Management of Hemophilia

• Prenatal Diagnosis & Carrier Detection
• Inhibitor & their Management
• Safety & Quality Issues for AHF-Panel Discussion
• HIV/AIDS Care
• Surgery in Hemophilia

SHC India team under its banner left for Vijay Chowk wearing Green T- shirts provided by the Common Wealth Games Organisers.

On Rajpath the SHC India team marched with great pride and enthusiasm. Chief Minister of Delhi, Ms. Shiela Dixit waived her hand in recognition with the announcement of Society for Hemophilia Care creating a stream of joy amongst the participants.

The objective again was to encourage better health and create the much needed awareness about hemophilia.

Kahwa - a Kashmiri green tea with almonds, saffron, cardamom, cinnamon etc to keep warm and healthy in winter was a great hit among the visitors. Specially made vegetables and salads as healthy snack was highly appreciated by all. This Carnival was utilized as a platform to create awareness about hemophilia. Pamphlets were also distributed in large numbers.

Baby Muskan Malhotra- a 6 year old girl was the best Mini Marathon special winner. She is the youngest girl who could answer correctly to what hemophilia is. She said "hemophilia is a deficiency disease of blood where the bleeding does not stop easily. It can stop if a child receives treatment with clotting factors".

The Mini marathon was flagged off by Ms. Asha Aggarwal, an Arjuna Awardee and international marathoner.During thanks giving Mr. Kapoor, Chairman of the Society for Hemophilia Care-SHC India said that Hemophilia is a bleeding disorder affecting about 1 lakh families in India. Due to lack of awareness and diagnostic facilities only 10% of such children have been diagnosed as of now. Prohibitively expensive treatment is the biggest deterrent in hemophilia treatment leading to disabilities and other social problems.

SHC India is providing the treatment support to such people at highly subsidized cost and sometimes free as well keeping in view its meager resources which it raises through public donations.

"Society for Hemophilia Care" - a registered all India Voluntary Organisation is working for such deprived people. It has organs in the States of J & K, Punjab, Delhi, U.P., Bihar, Jharkhand, Karnataka and Kerala.

Exotic Kashmiri Waazvan tingled the taste buds of more than 300 people with Rogan Josh, Yakhni, Kabargah, Chauk Charwan, Machh, Damallu, Nadir Yakhni, Kuang Chaaman, Kahwaa & much more.

Inaugural ceremony : The inauguration of the grand programme was graced by

Air Marshal S. Chand, AVSM, VM
Mr. Jain, Director (Finance), Baxter India Pvt. Ltd

Audience :

The auditorium was burst with more than 800 people; most of them working at very senior Government, public and private Corporate Houses. The audience enjoyed the live concert "Haseen Lamhe". The programme was organized in such a way that the audience could interact with the celebrity freely and establish a close rapport with the office bearers and volunteers of SHC. The whole programme was quite friendly and not only the audience but Sh. Jagjit Singh himself and his troupe enjoyed it.

Sponsors :

The following sponsors were more than happy in supporting the cause of hemophilia keeping in view the credibility of the SHC and the people behind it in view:

• Oil and Natural Gas Corporation Ltd.
• Baxter India Pvt. Ltd
• Kindfisher Airlines
Hotel Radisson, New Delhi
• Radio City and
• Hundreds of donors & well wishers
• Reuters, UK also covered the story on hemophilia and work initiated by SHC.

The event was flagged off by well-known international hockey player and former India Captain Shri Ajit Pal Singh, Shri D.D. Solanki, MLA and Shri Jittender Kapoor, Chairman, Society for Hemophilia Care. More than 1500 persons took part in this Marathon having 4 categories of runs virtually for every age group. Also present were Shri. Satyajit Sanskrit, President Delhi Taekowando Education. Technical support was provided by Dr R. K. Gupta, Secretary, West Delhi Athletic Federation.

The aim of organizing the Marathon was to make people aware of Hemophilia and related issues. Hundreds of individual most of who were amateur runners woke early in the morning to run for the cause of hemophilia. This Marathon was a significant step to inculcate the feeling of keeping healthy, caring for the hemophilic patients and being part of the movement.

The Marathon attracted people from all walks of life. There were top executives, lawyers, pilots, students including young and old. One could see people lined up along sides of various roads throughout the route and to cheer up the participants. A large number of senior citizens also turned up and it once again demonstrated the fact that will power and enthusiasm knows no age limits.

The programme was so nicely compeered by Ms. Sudha Sinha, Editor, Dwarka City.

Mr. Vijay Kaul, Executive Director of SHC, thanked the participants, Co-sponsors (UTI Bank Ltd., Mother's Pride, HDFC Bank, Baxter India Limited, Himalayan Water Company, Mata Chanan Devi Hospital) , West Delhi Athletic Association, Dwarka City, Civil Defense, Delhi Police and SAI for their support and help in organizing this maiden event.

The names of the winners in different categories are as follows:

Winners of Mini Marathon

• First prize: Nand Lal from Raj Nagar , Palam
• Second Prize: Vasu from Mount Carmel School, Dwarka
• Third Prize: Sandeep from Bahadurgargh (Haryana)

Consolation Prizes

1. Mr Naval from Raj Nagar, Palam
2. Mr D.K.Rai from Sector -7 Dwarka
3. Mr Mukul from VIS, Dwarka
4. Mr Vishwajeet Sharma from RSMS, Mohan Garden
5. Mr Milit Malhotra from Mount Carmel, Dwarka
6. Mr Suresh from Palam
7. Mr Parshant Rahi from Patel Garden, Kakrola

• First Prize: Ms. Komal Sharma from RSMS, Mohan Garden
• Second Prize: Ms Sarita from KVS(SPG), Dwarka
• Third Prize: Ms Aakansha from Sector-6, Dwarka

Consolation Prizes

1. Ms Ritu Tomar from KVS, C-2, Janak Puri
2. Mr Ashna from Mount Carmel school, Dwarka
3. Ms Swati from TAFS, Subroto Park
4. Ms Bandita from Rainbow English school, Janak Puri
5. Ms Khusboo from Rainbow English School, Janak Puri
6. Ms Smiriti Joon from Carmel Convent School, Chanayaka Puri
7. Ms Shreya Bansal, Rainbow English School, Janak Puri

• First Prize: Mr Ravi from Sector-22, Dwarka
• Second Prize: Mr Arjun Singh from Sector-9, Dwarka
• Third Prize: Mr Neeraj, Haryana

Consolation Prizes

1. Mr Puneet Kumar from Bahadurgardh
2. Mr Kishan from Palam
3. Mr Tarun from Palam
4. Mr Praveen Kumar from Bahadurgardh
5. Mr Kuldeep from Daurala, New Delhi
6. Mr Hitesh Kumar fromUttam Nagar
7. Mr Pawan from Haryana

• First Prize: Ms Anita- from IGIPESS, Delhi University
• Second Prize: Ms Rajani Tomar from KVS,C-2, Janak Puri
• Third Prize: Ms Rekha from Delhi University

Consolation Prizes

1. Ms. Sudha Pandey from IGIPESS, Delhi University
2. Ms. Karishma from New Delhi Convent, Palam
3. Ms. Nitika from DPS, Dwarka
4. Ms. Neelam Lamba from St Mary School, Dwarka
5. Ms. Simran from Dwarka
6. Ms. Gita Ramanan from Maitri Apptt., Sector-10, Dwarka
7. Ms. Nitya from Maitri Apptt. ,Sector-10, Dwarka

• First Prize: Sq. Leader Mr A. R. Natuyal from Sector-10, Dwarka
• Second Prize: Mr Jadish Singh from Sector-7, Dwarka
• Third Prize: Col. Chaudhary from Rashi Apartment Dwarka

Consolation Prizes

1. Mr. Tarun from Sector-13, Dwarka, New Delhi
2. Mr. T.K. Ray from Happy Home, Dwarka
3. Mr. B.K.Sharma from Prodoyogiki apartment
4. Mr. D. P.S. Gulia from Princes Park
5. Col. G.B. Singh from Sector-2, Dwarka
6. Mr. Sukdev Singh Bhullar from Sector-9, Munirka Apprt.
7. Mr. M .K. Chakraborty from Setor-7, Dwarka